STATEN ISLAND, N.Y. — John Hudson Dilgen, 23, a courageous and inspirational Tottenville resident who was a vocal champion for research into his rare, painful genetic skin disorder, succumbed to the ...
STATEN ISLAND, N.Y. — Dozens of participants — both two-legged and four-legged alike — partook in a polar plunge fundraiser in the waters off South Beach Sunday in the name of John Hudson Dilgen.
A revolutionary treatment brings new hope to those suffering from a devastating rare skin disorder, while showcasing an innovative funding model that could transform rare disease research In a ...