Raedyn lives with a facial difference that is caused by Pfeiffer syndrome. His brother, Julian, is his best friend. Julian believes that Raedyn is "just perfect in every way". Together the two are growing up and learning the value of having a brother who will always be there for you. | Special Books by Special Kids

As always I’m late to a party but today is national disease day. I’ve never jumped on this bandwagon because the word “disease” sounds contagious and we aren’t in that category. However, I will always take the opportunity to raise awareness for cranial syndromes. I’ve given the definition of pfeiffer syndrome plenty of times so instead I just want to say.... Here is a rare genetic mutation. She is beautiful. She is rare. She is loved. She is smart. She is capable. She doesn’t let her brother get

Pfeiffer syndrome is a rare genetic disorder characterized by craniosynostosis—premature fusion of the skull bones—present during pregnancy. This condition causes deformities of the head and face, prominent eyes, and short, wide thumbs and toes. This disorder often involves mutations in the FGFR1 or FGFR2 genes. #geneticdisorders #babylove #babycare #nicucare #newbornbaby #babyworld | Yuli Ismalia

Pfeiffer syndrome is a rare genetic condition which classically causes a clover-shaped skull and fused fingers. #Medical #Doctor #Surgery #Neurosurgery #Neurosurgeon #Neuroscience #Brain #BrainHealth | Dr.Z Neurosurgery